There is now a finished product to read from all the work done on the Best
Practices Study. Our committee will be working on
utilizing this study to
make services for our family members the best they can be.
ASD
Releases "Best Practices for Serving Adults with Autism" Study. Click here to
read!

1/12/06 Adult Issues Meeting Minutes
1. ASD Business Plan- A contract was signed with Michael Chapman to work
on a business plan that will be presented to the ASD Board. This will
hopefully enable the Board to understand what an organization under the
ASD umbrella sees as a certified provider of adult services. Theda,
Michael and I visited Developmental Disabilities Services Agency in NJ.
They are currently instituting a program to provide services to folks
with disabilities living at home with their families. This visit
provided us with some insight and gave Michael some leads to investigate
how others are doing what we hope to do one day.
The plan is due in June. It's possible that the provider agency could be
up and running in Jan 07.
2. Family Support Waiver. Meetings are in the process to provide the
public with info on the Family Support Waiver. This will help all those
Medicaid eligible folks receiving DDDS and their families.
The Division of Developmental Disabilities Services (DDDS) has
applied for a Family Support Waiver. Indiviuals must be Medicaid
eligible to qualify. This would greatly assist those families whose
loved ones with a disability qualify for services from DDDS. The
proposed waiver would offer an array of supports and services to
persons living at home with their natural families. These services
are designed to promote choices and empowerment.
De. must come up with 4 million dollars in state funds. We need to
contact our local Rep and Senator and encourage them to budget this
money so families have more support in their homes.
3. Valentines for Legislators will soon be distributed. the message
this yr is to encourage our Legislators to support funding of the
Family Support Waiver. Be sure you get your Valentines. If you don't
receive them by Feb 1, let me know.
4. Penny Orndorff, Director of Community Services of DDDS, provided
with some information on Community Services. In the past, most DAP
grads went into Special Population Program. That is no longer the
case. Community Services is anxious to provide our family members
that graduate from DAP with the best services available. Thanks,
Penny
Notes: Jan 30, Mon, 7-9PM Del Tech Stanton Parent Information
Center sponsoring: WANT TO KNOW HOW TO USE THE LEGISLATIVE PROCESS
TO CHANGE OR MAINTAIN PROGRAMS AND SERVICES FOR CHILDREN WITH
DISABILITIES? Some of our local Reps and Senators will be there.
Good opportunity to meet them and let them know our views.
Please contact your local Rep and Senator and tell them to support
the funding of the Family Support Waiver.
Next mtg will be in March. I'll give you the date ASAP.

Minutes Meeting on 9/21/05
Thanks to all who attended: Theda Ellis, Craig Shumaker,Dave Graham,
Alexis Hackett, Dottie Lund, Marie-Anne Agazadian, Jane Graci, Liz
O'Neill, Harold Rowland, Gloria Rybicki
1. Brief report given on committees being attended by Karen: Adult
Special Populations Task Force . The committee has looked at
entrance/exit criteria. Hopes to allow services to be provided to those
most in need by reccommending these criteria.
- DDDS Strategic Planning Committee has met w/in the last month to
enable the division to know the needs of those they service and put a
plan in place to serve folks better.
Susan Peterson, Theda and Karen met w/ MA Smith of DDDS along with Roy
LaFontaine (Deputy Dir) and others from the Division on the Best
Practices Study. The info from the final report was highlighted and
recommendations were discussed such as an Office of Autism, ASD as a
service provider, doing a small pilot utilizing 2 folks w/ diverse needs
and how their services are structured. All of these recommendations were
recognized as valuable. The next step is for the ASD board to decide on
how the organization will proceed and present that to the Division of
DD.
2. Open mtgs: to include state and service providers? Grp felt that if
agenda items required presence of guests, they would then be asked to
join the committee.
3. Discussion concerning ASD's future role in adult services. Theda
presented 4 items of discussion: Edelsohn Approach, Traditional services
- ie, day and residential services, suuport broker and office of autism.
The Edelsohn Approach concerns ownership of grp homes as the ARC now
does. This did not get support from the grp. ASD as a traditional
service provider also seemed like a huge endeavor. As a starting point
the grp seemed most interested in support brokerage. A suggestion was
made to start with a grp of 4 folks as a pilot. This number would help
with capacity. The question arose , "What if there were no services
available that were needed?"
Theda spoke of Dave Raymond from downstate that develops and supports
jobs for a small grp of people. Group was interested in hearing abt his
endeavor.
Office of Autism: most of the grp felt that this was the state's
responsibilty. Karen spoke of committee experience at last Sp Pops Task
Force mtg. Karen questioned if Community Services was being scrutinized
as Sp Pops is? This would enable state to assess for themselves if CS is
able to service the increased number of people w/ autism since many
adults w/ autism have been served by Sp Pops in the past. Perhaps this
will lead to the state deciding they need a separate "autism office".
Karen asked members to state what needs they would like met by an ASD
provider?
-at home supports, respite, recreation, transportation
-work support
-family supports w/ more flexibility
Concensus seemed to be since most grads would not get residential
services that ASD could best help by lending supports to families to
lessen the high demands of keeping their adult/child at home.